My Heart Aches

My heart is aching right now for a precious little boy and his mommy. Tripp Roth is suffering from a terrible, painful disease, E.B. I do not know much about it at all, nor am I claiming to. I have been following Courtney Roth's blog for a long time as she writes about the journey she has taken with Tripp as he fights a very painful battle. Tripp's skin is very fragile and he has very painful sores and blisters all over him. A single touch can be detrimental. How heartbreaking that much be for Courtney. Tripp has also had a trach in for a long time and his mommy doesn't even know what his cry sounds like, much less what it sounds like for him to say mommy.
Tripp has touched so many people's lives in his few short years on this planet, especially mine. I am finding myself sobbing right now trying to relate to Courtney and knowing I cant. Part of me doesn't want to be able to relate, to have to watch my baby suffer...and I feel guilty for that, though I know it is a human response. I hold Ryder so close to me, not wanting to let go. Hearing him fuss doesn't irritate me like it could. I am so grateful to be able to hear him fuss, cry, laugh, and babble.
Courtney has a strength and faith in God that I admire so much, though I know she is dying inside and would give anything to trade places with baby Tripp. But she knows that God has a plan for her and her sweet boy.
Her latest blog update is not a "good" one. It seems as though Tripp is starting to get tired of fighting and might not be with his mommy much longer. I cannot imagine what Courtney is feeling or thinking. Her blog says she knows that Heaven will be so much better for Tripp...No more sorrow, no more pain...but that doesn't make losing him any easier.
I am writing today to ask you to stop for a moment and send a quick prayer up for Tripp. Pray that God will give comfort to Tripp and peace. That his remaining time with his mommy and other loved family members is one that they will be able to cling to in these coming days.
If you have a moment, please read Courtney's blog and look through the pictures and even google E.B.
Courtney-You are amazing and my thoughts and prayers go out to you and that precious baby boy that you gave life to!!!!
Tripp's Story
The following pictures are from Courtney's blog and are of that sweet baby that I hope you will pray for